On Sunday June 19th, Little J got to participate in Max's Day with Ride A Wave in Santa Cruz.
I cannot express in words just how amazing this day was for Little J. This is his second year participating, and this year was just as fabulous as last year. Little J got to kayak and boogie board, he also got to surf.....STANDING UP! Last year they put him on a special surf board equiped with a seat, but this year they got him up on that board standing tall! Anytime he was in the water, his face was just a big bright smile and lots of giggling! The added bonus to this day was that several of Little J's classmates and fellow angels participated as well!
The people who put this event together and all of the wonderful volunteers really are beyond amazing! Little J was assigned 2 beach buddies, these two young men chatted with him, got him from one activity to the next and took him back to his favorite boogie boarding at least 15 times! It is just so amazing to see your child do things that you never in your wildest dreams imagined they could do much less would get the opportunity to do.....this organization and all of the volunteers out there made it happen! My heart is full......
Did you see the Vivnet Give Back Project link on my sidebar? Please take a moment to click on the link and vote for Foundation for Angelman Syndrome Theraputics to win! Angelman Syndrome has been cured in a mouse.... a few clicks of your mouse could bring us one step closer to the cure for Angelman Syndrome in people!
3 comments:
awwwwweee....he looks like he's having the best time!! so awesome! miss your face on the internets..xoxo
That's awesome! J looks like he's having such a great time! How wonderful for him! I'm definitely one of the ones hoping for a cure soon!
Hi My name is Jenna and I came across your blog. Little J is an amazing courageous, strong and determined fighter. He is a precious brave warrior, Cute Smilen Fighter, Handsome Inspirational hero, and a real amazing super trooper. That is so awesome he got to kayake and surf! I am so happy he had so much fun, he derves the best. I was born with a rare life threatening disease, 12 other medical conditions, and developmental delays. I love it when people sign my guestbook. www.miraclechamp.webs.com
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