Thursday, September 27, 2007
Honestly, I was a good mommy and took a few photos of Princess on her 1/2 year mark, but once I took the photos, the battery died. I will upload some new photos soon!
Princess J wants to wish her little friends Katelyn a happy 1 month birthday and Mari a happy 10 month birthday! The 27th of the month appears to be a good day for sweet little girls to be born!
Monday, September 24, 2007
After our visit to the ER last night, we were told that the neurology department would contact us for follow-up. I knew they opened at 8:30 in the morning, so I got up to get a jump start and called them. I spoke to a nurse and she told me that Little J's regular doctor was on vacation, so they would talk to one of the other doctors and call us back. By 12 noon, we still hadn't heard anything and Little J had a couple more of his gagging episodes, so I called and left a message. By 2pm, poor Little J had not been able to sleep without waking up gagging. So, I called our regular pediatrician and they got him in. After she examined him and observed his behavior a little, she believes that he has acid reflux and that the some of his behavior is more related to his being so tired and not necessarily seizure activity. She still wants him to see his regular neurologist for an EEG and check, but we're hoping that this new prescription will help.
In the meantime, she called the neurology department to try and light a fire under them to get him an appointment. They told her that they were going to start him on some seizure medication without even seeing him! She tried to tell the nurse, that she wasn't sure that his behavior was actually in need of seizure medication, but that he should be seen and assesed before a decision was made. Well, they called and left a message for us that they want to start this medication.
I plan on calling them tomorrow and letting them know that I am not giving my kiddo this medication, when they have not even seen him! The doctor trying to prescribe this for him has never even met him! I am so furious right now, that I could spit nails! If they wanted to start this medication, then why didn't they just tell the ER to give it to him instead of waiting until almost 24 hours after he was seen and almost 10 hours after I called them the first time to prescribe it! I'm hoping that we can just wait until his regular neurologist is back and then go from there.
Thanks so much for all of your prayers and good wishes, they mean so much! Keep them coming! I'm going to need all the prayers I can get to really fight for what my Little J needs! Thank goodness I have a great pediatrician in support of my choice!
Sunday, September 23, 2007
If your the praying type, we would appreciate it if you would say a prayer and send up some good vibes for Little J. We took him to the Children's Hospital ER this evening as we think he is showing signs of seizure activity. They evaluated him and ruled out any infections, so now we will follow up with his neurologist tomorrow. We ask for prayers that maybe this is just an off event, and if it isn't and is in fact the onset of seizures, that the doctors would be able to find the right medicine for control with no side effects or very minor ones.
Saturday, September 22, 2007
Friday, September 21, 2007
Anyway, so I head down to the school district office and fill out all the paperwork. They have a form I have to fill out to prove where I live! You would think that just my drivers license with my address on it would be enough right? Nope! Not only do I have to provide that, but I also have to provide a copy of our property tax bill and a copy of our PG&E bill! I think I looked at the lady like she was a crazy loon when she asked for all of that! What if I don't want them to know just how much electricity I use? LOL! Share my property tax bill? What if I don't want them to know that either! I'm almost suprised they didn't ask for DNA samples to prove I'm not pretending he's my kid to get him into this awesome school district! It really is a good school district, but still! I also had to sign a paper that said if they find out I'm lying about where I live and I don't belong in the district, that I have to reimburse the district for any education and services provided to my child! WOW! I guess there is a lot of district jumping going on or something, but I was shocked! My bet is when my parents enrolled me in school, they only had to fill out the form and sign it. Maybe show their drivers license.
Oh well, signed all the papers and they will start their student evaluations in a couple of weeks. Off to dig out a PG&E bill and my property taxes.....woohoo!
Wednesday, September 19, 2007
Once his appointment was over, we had to head over to the bank and pick up some fresh new check registers (oh yay! lol). Why is it, that now that I use Bill Pay for everything I go through check registers like they were water? I can't figure that out. I can't remember the last time I walked in that bank and there was no line (YAY)! Anyway, we got in and out of there and as we were leaving this woman stopped us and said that she had run out of gas and left her wallet at home. She asked if I could spare any money to help her get home. Although I stopped at the bank, I didn't take any cash out so alas I had none. As I loaded up the kids, I saw her stopping people left and right. A few gave her some change and a few like me said they had nothing to share. As I got in the car, I dug through our spare change and rounded up probably $1.50. Of course, by the time I did that, she was walking down the street. So, I decided to follow her and get the $1.50 to her. She seemed quite thankful, so I had to smile. I always wonder if someone is being honest and collecting that money or if they are scamming me. Usually, if it's a situation like the one she said she had, I try to give something. I figure if she's scamming me, that's outta her karma bank...not mine.
So, now we head home and on our front porch I find a cute little Minnie Mouse gift bag......inside it is a the cutest little dress for Princess J. There is no card or anything, so I have no idea who left it...but what a sweet suprise! Can't wait to dress Princess J up in it!!! So, if your the one who left the gift....THANKS!!!!!
Monday, September 17, 2007
We're going from one crazy week to the next here. Poor G has to commute all the way to Sacramento this week! Thankfully, it is only for 3 days. Little J has usual heavy load of appointments as well. Princess J and I will be kept busy getting him here and there!!
I had such an awesome time scrapping with my peeps on Friday! Spending time with
Suzy, Erin, Lizz, Rocio and everyone else that was there scrapping was such great fun! The gelato was the best! I actually got part of a project done too! Yay me!!!
Sunday, Princess J and I headed off to church again! Another fulfilling day! I love watching Princess J in church. The way she looks around and just takes it all in. She loves all the singing! She even adds a few of her own notes into it! Love it! So uplifting! Last week when we were in service and Pastor Doug was speaking, she started screaming....and not a pleasant scream either. This week, he started speaking and she was just giggling and making joyful noises! It was so stinkin' cute, but we made a quick exit out to the vestibule. Thankfully, the speakers were on out there so we could hear his message for the day. Our current series is The God You Can Know. Pastor Doug has such an amazing way of putting things in perspective and applying things to todays times. We are so lucky to have him! It was awesome to go to ABF (adult Bible fellowship) hour as well. So good to see so many new faces and lots of old friends we haven't connected with in awhile. Good to share God's word with one another. Good feelings! After ABF hour Pastor Doug was in our classroom. Princess J was busy telling him what was on her mind yet again as well. Luckly, he says he enjoys listening to her! :)
Princess J is almost 6 months! I cannot believe it....still (since I said that in a previous post too). I am just sitting back trying to enjoy these times with her. She's not sleeping through the night in our room anymore, but we still get a little time in the evening, where she sleeps on our bed with me before her last feeding of the night. I really love holding her and rocking her to sleep after her last feeding too. It's just so sweet! I've been missing our morning naps together, where she just lays on me and falls asleep. Lately, though, we've had a couple of these naps recently. I've been trying to savor them.
Well, we've got a big day tomorrow, so I'll sign off for now.
Thursday, September 13, 2007
Wednesday, September 12, 2007
Tuesday, September 11, 2007
These are in no particular order:
1. I have an amazing husband, who is an incredible father and a man that I know I will always be proud to call my husband.
2. Our newest addition Princess J! She is just an awesome little girl! I love all this baby time with her and while I'm sad to see her growing so fast, I cannot wait to see what the future has in store for her!
3. Little J! With his diagnosis of Angelman Syndrome, we were not sure if we were really prepared for this journey with him. Everyday, I look at his smiling face and no matter how hard some days are, I know God has blessed us with and trusted his care to us. He works so hard to learn new things and his progress sometimes slow and sometimes fast amazes me and makes me so proud!
4. We have a place to call home!
5. We have family who loves us, supports us when we need it, and who would do anything for our children!
6. I have an incredible group of friends! I love spending time with my peeps! I look forward to our girl time together and I am so grateful for their friendship and their support in good time and in bad!
7. I am thankful to be renewing my relationship with God and for being able to return to our church community! It feels so good to be there!
8. I am thankful that our church is seeing a need in our community for families of children with special needs. They are looking to us as parents of children with special needs and to others within our church community that have experience with children like ours to create a program to support us and to help us support each other and be able to participate fully in our church! While this won't happen overnight, just knowing that our Pastor has this on his list of things he wants to see fills my heart!
9. I am so thankful for all of the support services that Little J receives. We have been so blessed to have awesome professionals involved in his care. His therapists and doctors are honestly invested in his progress and his future. They get just as excited about his attaining goals as we do!
10. I am so thankful that we've met so many families online with other children like Little J! I am so blessed to have the opportunity to share the good and bad with them and know that they honestly understand. I am so blessed to be able to get and give advice in this amazing community of parents.
There are so many other things I am thankful for, but these are the big ones!
I hope you'll count your blessings today...big and small!
It just seemed fitting today. Praying for all the families who lost loved ones, that they are finding peace and comfort today. Praying for all the soldiers deployed today, those who are being deployed and for all of the families of soldiers who have lost their lives.
Sunday, September 09, 2007
That's what I love about Sundays! I am so happy, that G is off on Sundays, at least for this month. I have been feeling a little lost lately, not being able to attend church. Things are just a little too difficult trying to get both kiddos there and keep track of their needs while in service alone. Since G is off on Sundays for now, Princess J and I have returned to church! What a beautful and fulfilling day it was! It was so wonderful to catch up with those from our bible study class and see how fast their little ones are growing! It was wonderful to be able to sit and listen to our Pastor talk about God's word. It was awesome to sing His praise today! Princess J had a wonderful time! She really enjoyed the singing. She had a beautiful joyful smile during while the congregation was singing. Once the Pastor started to talk though, she decided that she wanted to talk back to him! It was so stinkin' cute, but for the sake of all the others we stepped out into the entry way. A little walking around holding her and she was fast asleep for the rest of the service. After service, our church had a guest speaker Sean McDowell. Although Princess J didn't let me sit for the entire program, his perspective on Decision Making and the Will of God made a lot of sense. Definately food for thought. It is amazing, how returning to church can really change your outlook and how your feeling about things. I can honestly say, I feel completely renewed, refreshed and grounded again.
I have a new found inspiration to complete some projects that I've been putting off. After reading this post on Cynthia's blog, I was reminded of my desire to read Your Best Life Now by Joel Osteen. I've read bits and pieces of it, but have wanted to sit down and really read and understand what he has to say. He really makes a lot of good positive points.
Better get back to reading and preparing for the busy week ahead! I really can't wait for next Sunday now!